Hello, if you are taking the time to read my first ever blog, which I have deliberated over starting time & time again (never really feeling it was the right time until now) thank you & welcome !
I feel that I am now in the right
place to blog about my diagnosis of muscular dystrophy, my love for photography & all things creative & how I have applied this love into starting a fundraising campaign with a difference.
My name is Gemma, although I prefer to be
called Gems or Gem, I am 31, I am a mother of two & 4 years ago I was diagnosed with Limb- Girdle muscular dystrophy 2A with a secondary genetic defect on chromosome 13, which I have been told is unique to our family as far as we know.
Muscular dystrophy is a genetic muscle wasting disease there are many types & many different strains of each. There is currently no cure for muscular dystrophy & this is something which many families are hoping will change.
Dan, 32 was diagnosed first with the same form of muscular dystrophy as myself. He was diagnosed at a younger age & has lived with the disease all his life.
In my blog I am going to talk about how muscular dystrophy affects me, my family &
our lives on a daily basis, how laughter & comedy is what I turn to when things get tough, my new found support network as a result of fundraising for MD UK & the new portrait & fashion magazine I have launched as part of my #createdonate
campaign all in aid of raising vital funds for lifesaving reseach into all the different types of MD.
This first blog is very short, it is just a "hello I am here" post & I will be writing when I feel the urge to do so, I am going to use this
platform as my diary in many ways & also as a way of hopefully supporting others in similar situations as myself & my family.
Feel free to leave a comment, ask questions & generally be nosey !
All future blogs can be liked
& commented on in the "Gems blog" section found at the top of this page second button from the left
Maybe you will come back soon for the next blog post
thanks for reading !